Sunday, June 6, 2010

Dyspnea Hypotension Tachycardia And Dka

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Since this spring I have - with Charlotte - taken several trips and short trips, something I would love to continue to make and more.

First we were on 4 March 2010 closing ceremony of the 1000 cranes Action in Berlin, for a day. On 15 March, we went to Strasbourg in order to know the participants of a press conference at the European Parliament, protesting against unauthorized taken charge of their children by German youth welfare offices. On the evening of 18 March, then came back to Berlin, there took place over the ensuing weekend, the first Germany-wide meeting for families with children on Dravet's Syndrome erkankt are held ( Dravet meeting ). That Charlotte has Dravet Syndrome, we know since early 2008. We stayed out over the weekend and drove late in the Dientagabend back to Karlsruhe. All these trips we made by train. Berlin - that what I have seen it - liked it very much.

Last weekend we were now in Hedel, Netherlands, at this year Hetof with it. It was another amazing experience, just as in 2008. Last year it was impossible for me to drive to Hetof, since we already before a weekend trip to Versailles and Paris (also in the context of a Dravet's Family Reunion) and had made just days after the written tests Hetof to secondary school degree started, and I with my children (my son graduated from these tests last year) had to-go days or weeks, after Oberrimsingen in Breisgau. But this year should be in it Hetof again - we were very lucky, my car was roadworthy again and secured the finances for the trip too. Therefore, we could afford a nice accommodation in a converted car from the 60s - an experience in itself.

And here are some pictures with impressions from our trips:



preparations Action for Crane - later we left the cranes of the great plan of flying in the air by waving the plane, in addition we also sang. It was modified after 4505 origami paper cranes folded technique in various sizes and many colors!



In the big tent at Hetof - Charlotte happy middle - and views of the kitchen tent.



The caravan, situated on an organic farm, from the outside and inside.

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